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Alzheimer's and Related Dementias Links

Wisconsin Sites

Alzheimer's Association, South Eastern Wisconsin Chapter
www.alz.org/sewi/

Alzheimer's Association, South Central Wisconsin Chapter
www.alz.org/scwisc/

Alzheimer's Association, Greater Wisconsin Chapter
www.alz.org/gwwi/

Alzheimer's Support Center
www.alzheimerssupportcenter.org

Center on Age and Community
www.uwm.edu/Dept/ageandcommunity
A multi-disciplinary, university-wide academic center that combines the university’s expertise with the experience of those who work in the field of aging. By greatly expanding research in the study of aging, offering new degree and non-degree programs in gerontology and expanding and fostering community partnerships and outreach, the center aims to create innovative ways of improving our lives as we age.

Senior Resources (Wisconsin)
www.seniorresourcesonline.com

Timeslips
www.timeslips.org
Timeslips is a project led by a team of artists working with caregivers and people with Alzheimer's disease to encourage creative expression. Stories are shared in workshops once a week in Milwaukee, Wisconsin and New York City.

Wisconsin Alliance for Family Caregiving
www.uwex.edu/ces/flp/caregiving/
The Wisconsin Alliance for Family Caregivers is a network of organizations and family caregivers that provides education, resources, and support to family caregivers statewide.

Wisconsin Department of Health and Family Services
www.dhfs.state.wi.us
From this page you can access a variety of information on programs and services in Wisconsin for older people and caregivers. A brief description of each service is available.

Wisconsin Office on Rural Health
www.worh.org
The Wisconsin Office of Rural Health (WORH) was established in 1975, within the University of Wisconsin's Medical School, to address shortages of health services in rural areas. As the WORH evolved, it developed a strong health professional recruitment program and worked with many programs at the federal and state levels to bring health care services to underserved areas.

The Wisconsin Comprehensive Memory Program
memoryresearch.medicine.wisc.edu
Current research opportunities available at the Wisconsin Comprehensive Memory Program of the University of Wisconsin School of Medicine, and the Geriatric Research, Education and Clinic Center (GRECC) of the Madison VA Medical Center.

General Sites

Ageless Design
agelessdesign.com
Ageless Design, Inc. is a consulting, education and information company dealing with living environments and how they are conceived, designed and can be modified. Ageless Design studies seniors and the age-related conditions they experience, looking specifically at what the environment presents to many of our older adults every day, and recommend creative, cost-effective solutions, and lists of products.

Alzheimer's Association
www.alz.org
The national Alzheimer's Association, as well as its 82 local chapters, provides information, support, and assistance on issues related to Alzheimer's disease, funds research on dementia, and advocates for improved public policy. In addition, the Alzheimer's Association provides educational programming for professionals, family caregivers, and the general public.

Alzheimer's Disease Education and Referral Center (ADEAR)
www.alzheimers.nia.nih.gov
Use this site to find current, comprehensive Alzheimer's disease (AD) information and resources from the U.S. Government's National Institute on Aging (NIA).

Alzheimer Europe
www.alzheimer-europe.org
Alzheimer Europe aims to improve the care and treatment of people with Alzheimer's disease through intensified collaboration between its member associations in Europe. Includes contact details for associations around Europe. Available in English, French, Greek, Italian, Spanish, Dutch, Portuguese, Swedish, Danish and Finnish.

Benjamin B. Green-Field Library & Resource Center
www.alz.org/us/rtlibr.htm
The Alzheimer’s Association’s Benjamin B. Green-Field Library & Resource Center collects a wide range of materials related to Alzheimer’s disease and related disorders and provides services to family members, educators and students, health professionals, social service agencies and the general public.

Dementia Web
dementia.ion.ucl.ac.uk
Dementia Web includes CANDID - support, advice and information for caregivers, a virtual carer support live chat room, as well as the International Working Group on Harmonisation of Dementia Drug Guidelines and the Dementia Research Group.

Family Caregiving Alliance
www.caregiver.org
Founded in 1977, Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. FCA now offers programs at national, state and local levels to support and sustain caregivers.

GeroWeb
www.iog.wayne.edu/GeroWebd/GeroWeb.html

Institute for Brain Aging and Dementia (University of California at Irvine)
www.alz.uci.edu
The UCI Institute for Brain Aging and Dementia is one of 29 Alzheimer's Disease Centers (ADCs) across the country designated and funded by the National Institute on Aging of the National Institutes of Health. The Institute for Brain Aging and Dementia is also one of 10 Alzheimer's Research Centers of California (ARCCs). The Institute seeks to better understand and discover the causes of Alzheimer's disease, means for effective treatments, ways to help families/caregivers and those diagnosed with the disease.

Memory & Aging Center (UCSF)
memory.ucsf.edu/Education/Disease/ftd.html

The Nun Study
www.mc.uky.edu/nunnet/
The Nun Study is a longitudinal study of aging and Alzheimer's disease funded by the National Institute on Aging. Participants are 678 American members of the School Sisters of Notre Dame religious congregation who are 75 to 106 years of age.

Primary Progressive Aphasia Program (Northwestern)
www.brain.northwestern.edu/ppa/ppa.html

Research Sites

Alzheimer Research Forum
www.alzforum.org
A scientific knowledge base on Alzheimer disease, with research news, expert commentaries, and databases for peer-reviewed articles, drugs, research reagents, grants, jobs, conferences, and more.

Alzheimer Solutions
www.caregiving-solutions.com
A non-profit education and reseach organization. This site contains information on caregiving, causes, diagnosis, prevention, stages, and treatments.

Alzheimer Web
dsmallpc2.path.unimelb.edu.au/ad.html
Alzheimer Web contains information on Alzheimer's research and offers a mailing list that disseminates information on research developments.

Dana Brain Web
www.dana.org/brainweb
175 neuroscientists recommends a group of Web sites that contain information about brain diseases and disorders.

National Alzheimer's Coordinating Center (NACC)
www.alz.washington.edu
NACC coordinates and fosters collaborative research between 32 Alzheimer's Disease Centers across the United States, funded by the National Institute on Aging. The NACC web site is very useful for people involved in Alzheimer's Disease Research and also a great resource for caregivers as well.

The Wisconsin Comprehensive Memory Program
memoryresearch.medicine.wisc.edu
Current research opportunities available at the Wisconsin Comprehensive Memory Program of the University of Wisconsin School of Medicine, and the Geriatric Research, Education and Clinic Center (GRECC) of the Madison VA Medical Center.

Association Sites

American Academy of Neurology
www.aan.com
The AAN Web site provides information about the medical specialty of neurology and disorders of the brain and nervous system, with links to other neurology resources.

American Association for Geriatric Psychiatry
www.aagpgpa.org
The AAGP is dedicated to promoting the mental health and well being of older people and improving the care of those with late life mental disorders. It enhances the knowledge base and standards of practice in geriatric psychiatry through education and research, and by advocating for the mental health needs of older Americans.

American Association of Retired Persons
www.aarp.org
AARP serves persons age 50 and older through information and education, advocacy, and community services which are provided by a network of local chapters and experienced volunteers throughout the country.

American Medical Association
www.ama-assn.org
AMA's work includes the development and promotion of standards in medical practice, research, and education; strong advocacy agenda on behalf of patients and physicians; and the commitment to providing accurate, timely information and discourse on matters important to the health of Americans.

American Geriatrics Society
americangeriatrics.org
AGS is dedicated to improving the health and well-being of all older adults and seeks to effect change in the provision of health care for older adults by shaping attitudes, policies and practices regarding health care for older people.

American Psychiatric Association
www.psych.org
The APA Web site provides information on mental illnesses, medications, and public policy advocacy.

American Society on Aging
www.asaging.org
The ASA seeks to enhance the knowledge and skills of persons working with older adults and their families.

The Association for Frontotemporal Dementias
www.ftd-picks.org

National Council on the Aging
www.shs.net/ncoa/ncoa.htm
NCOA serves professionals from a wide range of human service disciplines and advocates on behalf of millions who are reaching or have reached retirement age.

National Parkinson's Foundation
www.parkinson.org
The mission of the NPF is to find the cause and cure for Parkinson's disease and related neurodegenerative disorders through research, to educate general medical practioners, patients, their caregivers and the general public, to provide diagnostic and therapeutic services, and to improve the quality of life for both patients and their caregivers.

Society for Neuroscience
www.sfn.org
The SCN is the world's largest organization of scientists and physicians dedicated to understanding the brain, spinal cord and peripheral nervous system. The goals of the Society are to advance the understanding of the nervous system by bringing together scientists of various backgrounds and by encouraging research in all aspects of neuroscience, to promote education in the neurosciences, and to inform the public about results and implications of new research.

Older couple
The Urgency of Our Mission

In the U.S. approximately 5-10% of the population aged 65 and older has AD. In Wisconsin, this number is expected to increase by 58% from 103,000 to 163,000 persons over the next 25 years.

19 million Americans say someone in their family has the disease.

50% of persons with AD are undiagnosed and therefore, untreated.

Families delay seeking help for almost three years after the onset of cognitive symptoms.

50% of nursing home residents have AD or a related disorder.

Family and friends provide almost 75% of home care. Costs for at-home care average $12,500 each year with families paying almost the entire cost out-of-pocket.